Celine Dion has opened up about her struggle with Stiff Person Syndrome, revealing her most vulnerable moments amidst this challenging journey.

The 56-year-old Canadian singer first shared her heartbreaking diagnosis in 2022, telling fans: “I wasn’t ready to say anything before but I’m ready. Recently I’ve been diagnosed with a very rare neurological disorder called stiff-person syndrome which affects one in a million people.”

The ‘My Heart Will Go On’ singer disclosed that she has been enduring spasms throughout her body. As the condition persisted, she had to make the difficult decision to cancel her Courage World Tour dates through 2024.

Her diagnosis, its revelation, and the profound impact on her career will be featured in the upcoming Prime Video documentary, I Am: Celine Dion. This documentary promises to offer fans an intimate and raw look into the life of one of music’s greatest icons. The emotional trailer is now available for viewing.

In the newly released trailer, Dion is seen recording her heartfelt 2022 message to her supporters. She expresses how much she lives for the unique joy of performing live. The trailer then shows scenes of numerous medication bottles, as Dion says: “It’s not hard to do a show, you know? It’s hard to cancel a show.”

With tears in her eyes, she adds: “I’m working hard every day. But I have to admit, it’s been a struggle. I miss it so much — the people, I miss them. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. I won’t stop.”

This emotional trailer comes just weeks after Dion spoke about hoping for a “miracle.”

Watch below:

Appearing on the cover of French Vogue, Dion told the publication: “I haven’t beat the disease, as it’s still within me and always will be. I hope that we’ll find a miracle, a way to cure it with scientific research, but for now, I have to learn to live with it. So that’s me, now with Stiff Person Syndrome.”

She continued, sharing her perseverance amidst the struggle: “I’m working very hard and tomorrow will be even harder. Tomorrow is another day. But there’s one thing that will never stop, and that’s the will. It’s the passion. It’s the dream. It’s the determination.”

What is Stiff-Person Syndrome (SPS)?

According to the National Institute of Neurological Disorders and Stroke (NINDS), SPS is an extremely rare and progressive neurological disorder characterized by several symptoms:

• Stiff Muscles: Individuals with SPS experience stiffness in the trunk (torso), arms, and legs.
• Heightened Sensitivity: They may also exhibit increased sensitivity to noise, touch, and emotional distress, which can trigger muscle spasms.
• Postural Changes: Over time, people with SPS may develop hunched-over postures, and some may become too disabled to walk or move.
• Falls and Injuries: Many individuals with SPS are prone to frequent falls due to their lack of normal reflexes to catch themselves, which can lead to serious injuries. This fear of falling can even make them reluctant to leave their homes.